Taming the Wolf

The ups and downs of life as an early 30s career girl trying to balance the various demands of life, including fibromyalgia. autoimmune and dietary issues. Somedays I succeed more than others, but it’s an adventure…

Midrin – an update February 1, 2011

Filed under: Drugs,Medicines — jwz1978 @ 1:32 pm

When I first started suffering from migraines several years ago, Midrin was one of the only drugs I found that helped ease my migraines and headaches.  I’ve been able to wean down most of my use of it over the past two years, particularly with dietary changes, but always thought it was there if I needed it…little did I know, I was wrong.  I used the last of my stash back in December.  Sounds like I might be out of luck should I want a refill.  For more information on what I’m talking about, check out this interesting post today from Teri over on migraine.com

This is something I need to start paying more attention to.  While I’m not on it currently and didn’t have plans to try to get a refill at the moment, I’m now left here to worry about what happens next should I need one?!

 

Changing Seasons, Changing Health October 22, 2009

Filed under: Fibromyalgia,Flare,Medicines — jwz1978 @ 8:01 pm
Tags:

Ah, welcome to fall.  Falling temps.  Rising temps.  Rain. Snow. Sun.  One day to the next, no idea what the weather might hold.  Isn’t that just a joy.

The truth is, I love fall.  I really do.  Sweatshirts and football, always fun.  What’s not fun is how my body reacts to the fall.  I’ve always had some sort of reaction to fall.  I don’t know if it’s the weather, or if it is the change in the light cycles, but something always hits me.  This year it’s been worse than it has been the past few years.  I think it’s because this year I’m still trying to build my way back up from where I ended up this past winter after the flares.  I started off the season not feeling quite as good as I have these past few fall seasons.  On top of that, I had a crazy couple of weeks with work (long hours, increased stress) preparing for a trial that just came to an end.  I powered through on adrenalin (love that hormone) but then crashed.  Back on pain meds, sleep issues, tension, stiffness…ah yes, I love fall 🙂

The good part is that this year, I have some extra tools to deal with this.  I’m going to get back to taking my supplements (I’ve been bad), I’ve got the gluten-free diet (need to work on sticking with that), I’ve got the acupuncture and the chiropractic appointments, massage appointments at least monthly, and although I hate to use them, I have my pain meds.  I’m learning that taking them is not a sign of weakness.

So bring on the rest of the fall season.  I’m ready to work with the season, instead of letting it take control.

 

Prednisone me… March 11, 2009

Filed under: Drugs,Flare,Medicines,Questions — jwz1978 @ 7:55 pm

While I was thinking about medicines and long term therapy, I thought I’d ask another related question about prednisone.  I started a prednisone burst just over three weeks ago.  20 mg made a quick difference in bringing up the energy level, dramatically.  The pain was improved, at least for a few days.  Then randomly (or so it seems), the pain kicked back in, but different in some ways.  It was more the muscles, not just the joints.  A switch to Ultram ER helped, and the week I was at 15 mg was the best I’ve had in so long.  I even managed to be social over that weekend and stay up late(r)!  But last week I went down to 10 mg, and within two days, the body was letting it be known that it didn’t like it.  Major fatigue again and the pain just ratcheted back up, to where I was doing the Ultram and several doses of Relafen and still not feeling much relief.  I talked to the rheum, who told me not to drop down to 5 mg this week and to stay at 10 mg until my Monday appt.  So now I’m left wondering what next?  What are other options for treatment if lower dosages of prednisone don’t seem to help? The other times I’ve done prednisone bursts, I didn’t have this problem at all, so that sort of worries me too, but it’s been probably close to 10 years since I’ve had to do a burst.  It’s so frustrating (what isn’t with these things), but I was really starting to feel better, really feeling hopeful about things improving, and it sort of felt like the rug was pulled back out from under me.

Does this happen often with prednisone bursts, where you see improvements in your symptoms but then hit the halfway point or so and see it start to go the opposite direction?

 

Fibro or Lupus?

Filed under: Drugs,Fibromyalgia,Flare,Medicines,Questions,Treatment — jwz1978 @ 7:46 pm

This is probably my fault for being uneducated about my illnesses in many ways, but I struggle quite often with trying to figure out what it is that is causing my issues day-to-day.  Is it the auto-immune system rebelling?  Is it the fibromyalgia kicking in?  When I’m not flaring, which I haven’t really in years, I’ve always just assumed that fibro was really my problem, that it was causing my aches and pains and making me more tired than I otherwise would be.  But, over the past few weeks, I’ve begun to wonder, particularly as I accept the fact I need to look at long term treatments here, medically, at least for a while.  Should I push to try some of the newer fibromyalgia treatments such as Lyrica and Cymbalta?  At the same time, I worry about trying those when it seems like the lupus is the major problem at the moment, but then again, I’m not sure I ro the rheum know the source of the symptoms.

The only treatment I’ve tried and had much success with on the lupus front is prednisone, but it seems to be taking fairly high doses for relief this time, so I don’t know how long that will be an option.  Plaquenil and I didn’t get along well when I tried it back in college, so that’s another option that is probably not available to me, or at least would be a last resort.

Not having had to think about this for about 10 years (but knowing that the options are pretty much the same due to a lack of new drugs for treating lupus), I am curious what others take and do to treat and control lupus flares, both short term and long term.  Has anyone with fibromyalgia used Cymbalta or Lyrica?   Thanks for sharing!