We’re going to give this a shot again. Maybe not that often, and probably not on any one topic or the other, but I think I’m feeling the desire to rejoin the world of semi-anonymous ranting and ravings and commentary 🙂 Things are busy right now, which means I probably won’t get back into writing for a while, but it is something I enjoy doing. I hope that everyone is enjoying the summer, it’s amazing how quickly these past few months have flown by. With that, back to work, enough of a break for now
Out of sight, out of mind June 10, 2009
So I’ve found I’ve been very neglectful of this blog these past few months. It’s due to a variety of factors, some good some probably not so good. I’ve been spending a lot less time on the computer, and I can’t decide if that is due to me feeling better and being able to work on other projects, or me just being tired of the computer screen. Probably a bit of both if I’m honest. I find myself wanting to avoid the computer after I get home from work and on weekends anymore.
At the same time, I’ve felt sort of blah lately, and just can’t work of the energy to think of anything interesting to write about. I figure if I don’t want to read it, no one else would either. So instead, the blog just sits here, collecting imaginary Internet dust. At the same time I’m not writing mine, i’ve also fallen behind on my blog reading, which bothers me more too. I learn so much from reading other’s blogs, even just their experiences dealing with similar problems or issues of life.
I’d like to get back into writing. I like to write, I love expressing myself in written form. That being said, I’m not real optimistic about improving on the writing. I think I need to rethink topics in general, maybe expand my mindset a bit more. Figuring out how to post from the blackberry would help too, I need to work on that.
So that’s the status now and update. I’m going to make more of an effort and ponder topics (suggestions always considered ;).
Acupuncture Today May 20, 2009
Today was round 6 of the acupuncture. Each time I go, I’m a bit more convinced to keep going. These past few visits we’ve done all the work on the back, which for some reason just relaxes me so much more. I doze off every time. I still find it odd that I can do that, but it’s wonderful to have that absolute reaction, even if just for a short while. My muscles that are normally so tight and tense just seem to let go. I think I need to do some more reading up on acupuncture to get a better understanding of how all this works, because it just fascinates me.
I’m still trying to sort out how I feel longer term after a treatment. I know that I’m parched after each one, like all the water has been sucked out of me. Today I took down a vitamin water in about 2 minutes while I was making lunch, and the same water craving has continued all day. The rest of me feels pretty good, but today I’ve had some “head” issues afterwards, that I don’t think I can claim/blame on the acupuncture. Lightheaded, nagging headache, that sort of stuff. So we’ll see how tomorrow goes.
Even though I’m not at this point noticing huge long term benefits, I’m feeling so much better overall with all the changes, including the acupuncture, that I’m sticking with it. I think it fits in well with my more holistic view of my health plan, so two weeks from now, I’ll be back again, looking forward to one of the few occassions I get to take a nap in the middle of the day 🙂
I had the honor of being asked by Maria over at My Life Works Today to be today’s guest blogger. It’s a wonderful site and a great web resource that I highly recommend checking out. There have been a series of guest bloggers throughout the month, all with wonderful and unique perspectives and views of dealing with chronic illness. Thanks, Maria, for the opportunity to be a part of My Life Works Today, and welcome to those who wander over this way for the first time.
Statue or Bird May 19, 2009
Today was one of those days where it felt like everything I did took that much extra effort. Why today is the part I don’t get. I slept the same, if not better, than the past few nights. I didn’t have that hard a Monday or weekend. Couldn’t think of anything I’d had to eat that would set me off. Yet from the moment the alarm went off this morning, I could just tell. The effort to wake up. The effort to get ready, taking much longer than normal. And throughout the day, it just continued down that same path. I made it through the calls at work and the odds and ends, but I just didn’t feel productive. I’m finishing up a few things tonight, and it is the same. In addition to the fact I must have had some wheat in with dinner without knowing that brought on a headache, I’m ready for this day to end.
Days like this just bring me down. I’m tired. I hurt. I get cranky. I know that it’s just because it’s one of those days, but you know what, I HATE these days. I was working up a good funk earlier today after dealing with some work issues, when I was on Twitter and saw a post someone had made that seemed to fit today. It gave me a good chuckle, and seemed to fit both how the day was going for me all around.
“Accept that some days you’re the pigeon & some days you’re the statue”
Today, I’m a statue. Tomorrow, I’m aiming to be the bird.
I played around with the “themes” available to me from wordpress last night trying to find one that I liked. This was the best I could come up with, although I’m not a huge fan. Odds are you might see a few changes in the theme over the next few days if I find out a good source for wordpress themes!
Survey: Managing Chronic Diseases May 18, 2009
Today I started reading RA Guy, and one post in particular caught my eye. It was a link to a study regarding obstacles those with chronic illnesses face. The definition of chronic illness is very inclusive. Needless to say, my interest was piqued, and I decided to check out the survey. It’s on the longer side, but well worth the time (and you don’t have to do it all at once either). Your input can make a difference. Consider sharing your thoughts and experiences. The information below is about the study and includes the link. Also, it’s not just for those with chronic diseases, but for caregivers as well.
Advocacy for Patients with Chronic Illness, Inc. and the University of Michigan Center for Managing Chronic Disease have been awarded a grant by the National Institutes of Health (NIH) to study the obstacles facing the chronically ill and caregivers, interventions that do and do not work to surmount those obstacles, and ways in which the work done by the NIH, including research and clinical trials, may be helpful to patients with chronic illnesses. With the help of twelve patients and caregivers, we have drafted a survey which is available online at:
If you have a chronic illness such as Crohn’s disease, ulcerative colitis, rheumatoid arthritis, fibromyalgia, multiple sclerosis, immune deficiency, or other chronic illness or are a caregiver of someone with a chronic illness, are at least 18 years old, and would like to take the survey, please do so. If, for any reason, you are unable to take the survey online, or you would prefer to be interviewed by telephone, or if you have any questions at all about the research, please contact Jennifer Jaff at (860) 674-1370. She will answer any questions you may have, provide more details about the study and arrange for an interviewer to call you to schedule the telephone interview at a time convenient to you. Any services you or the person you care for may receive from Advocacy for Patients will not be affected by your participation or decision to not participate.